We are providing the following links to other websites to help speed up your search for useful information on the internet.  We found these links through our research of RBCD and corneal dystrophy.   These links are for educational purposes only.  If you are interested in any of the information you find here, please discuss it with your doctor.  Corneal dystrophies are very rare and information sharing is very important.  Make sure you give your doctors our information as well, and if they have any questions, or concerns, or want to know about what you find here, they can contact us at the website.  Also, to any physicians that have expertise in the area of corneal conditions, diseases and dystrophies; we welcome and encourage you to join with us at Hope For Sight.org.   We hope by bringing patients, doctors and science together, that we can make a difference in the quality of life for many who live with painful corneal diseases.  Please check this page often as we add information and links as we find it.

The following links will take you off of our site- you can use the back button on your browser to return to this page.

Descriptions of dystrophies and various diseases and degenerations:

Digital Reference of Ophthalmology- detailed pictures and info for several common dystrophies

See a diagram of the cornea and explore the basics of Corneal Disease

More detailed, yet easy to follow, info about corneal disease and treatment options

p.s.(you don't have to take the test!)

more information, originally meant for optometrists and contact lens providers- descriptions of dystrophies and

other information to share with your doctor

Really detailed info on recurrent corneal abrasion, (you may need a medical dictionary for a few paragraphs of this one)@emedicine.com

-The Buzard Institute-,

well written simple descriptions of various corneal dystrophies-

Related support groups:

www.keratos.neuf.fr (in Europe) for information on neurotrophic keratitis (anesthetic and hypoesthetic corneas), severe dry eyes and corneal dystrophies

www.fuchsdystrophy.org (a support group for Fuchs' Corneal Dystrophy)

www.sjsupport.org (the Steven Johnson Syndrome foundation)

Stevens-Johnson syndrome-

Research organiztions:

National Plan for Eye and Vision research- NEI

Genetic and Rare Diseases information center

Low vision resource list- National Eye Institute

Research to Prevent Blindness

National Alliance for Eye and Vision Research

Various treatment options, information, and centers:

Boston Foundation for Sight

Dr. Perry Rosenthal- The Boston Scleral lens-  mainly being used to treat severe conditions like sjs-  and has been tried for a few corneal dystrophy patients-  YOU MUST HAVE A DOCTOR REFERRAL TO BE CONSIDERED AS A CANTIDATE FOR THESE LENSES. 

www.ocularsurface.com
Scheffer C. G. Tseng, M.D., Ph.D.

Center for Sight

Dr. Sheraz Daya, this is in the UK

Everything else:

a link to eye related trials @ ClinicalTrials.gov

 if you haven't found what you are looking for, try this link

with over 430 hand picked links for eye disorders

Association of Parents Having a Kid in Contacts (APHAKIC) Congenital Cataracts

http://health.groups.yahoo.com/group/aphakic/

dvd for any young children who need to use and eye patch

and do not want to!

created by a mom for her son with amblyopia

We also have several references that simply have too much content for our website, but contain useful information on the various dystrophies and degenerations of the cornea, which we are happy to share- SO IF YOU DO NOT FIND WHAT YOU ARE LOOKING FOR HERE, please contact us, we may have more information for you.